News Walk for Victory by Times Staff • June 6, 2019 • 0 Comments On Saturday the Marfan Foundation held its Annual Walk for Victory for Marfan/Ehlers-Dan-los Syndrome on the Boston Common. The Boston Walk for Victory helps raise awareness and advance the life-saving work of The Marfan Foundation. Marfan syndrome, as well Ehlers-Danlos Syndrome, is potentially life-threatening genetic disorder, but people can live normal lifespan if they are diagnosed and treated.